Hi suehb,
Welcome to our community – I am glad you found us.
Another member, NatR mentioned CCAC in a post yesterday How do I support the caregiver (my dad)? It sounds like they can do a comprehensive assessment - for your fathers’ needs and yours too. The Virtual Hospice also lists resources available across the country. You may already be aware of them but just in case Programs and Services will link you.
Oldbat started The Long Haul and in it she said, “Then there is the fear of the expected, experienced by those caring for someone with a long, ultimately terminal illness. This, along with all the other fears, makes life unbearably hard. Harder still when, regardless of the cause, there appears to be no end in sight. Nor do we want one.”
Are you and your dad able to talk with each other about worries/concerns? Does he worry about you too do you think?
Katherine