It’s normal for people to feel a range of
emotions when they’re told their illness is progressing and death isn’t far.
Commonly people say they feel numb, sad, helpless, disappointed, angry, or
afraid. Family members often report similar reactions. There really are no
specific words to alleviate the stress of the situation, but there’s a lot you
can do to give your mom some comfort.
The best approach generally is to be attentive
to your mom. Let her know you’re there to support her. Often people assume
their support and intentions are obvious and they don’t need to say it out
loud. Yet it can give someone a lot of comfort to hear words along these lines:
"I love you and I care about you. I don’t like to see you going through
this difficult situation. You’re not alone. I’m here for you whenever you need
me".
Listening may be the single most helpful
thing you can do. It shows your mom she’s important to you, that you’re attentive
to her needs, and that you’re available to her. It’s okay to ask your mom what
she wants to talk about, and what she doesn’t want to discuss. Consider asking
what she thinks about her situation, and whether she’s afraid. There are some
things you may want to avoid saying. For example, people often say, "I
know what you’re going through". No doubt it’s said with the best
intentions, but it implies that you’ve been through the same things and have
felt the same things. This can be interpreted as minimizing the other person's
experience, and may give the impression that you just don’t understand, so
there’s no point in talking further. You may consider instead something along
the lines of, "I don’t know how it feels to be in your situation, but I
love you and I’m here to support you".
It’s very hard to watch someone cry or show
distress. This may be one of the toughest parts of being with someone who is
dying. It’s common to feel helpless, and really, there’s nothing you can say to
fix the situation and stop the tears. If your mom cries, this is the time to
show your love and support. Hug her and hold her. Let her know you’re there for
her. Crying and feeling sadness are very normal in the face of an advanced
illness. If your mom’s sadness becomes severe, it’s important to ask the
healthcare team for help.
Some people find that illness shatters
their sense of meaning and purpose. If your mother considers herself religious,
she may wish to maintain or renew her connection with her faith community and
its practices as a way to re-build the sense that life is meaningful. Other
ways to find meaning include focusing on whatever is good in the present
moment. A visit from a close friend, for example, may provide meaning even in
the midst of a difficult day.
For many people, relationships are central
to their understanding of meaning and purpose. You might want to affirm the
meaning you find in your relationship with your mother by:
- reminiscing together;
- enjoying favourite activities, places, or
rituals together;
- openly expressing your love, affection, and
gratitude;
- working through treatment decisions and
changes in roles and needs;
- letting go of old hurts and resentments;
- talking about the way the illness is
changing family life or relationships.
Ask your mother if she has specific goals
or things she’d like to do. People often find that finishing some task or
resolving an old conflict can bring peace. Ask if there’s any way you can help
her.
Your mother may also have some thoughts
about what kind of legacy she’s leaving. It’s well known that people benefit
from believing they’ve passed on something from their lives that may have
meaning to others. You may ask your mom if she has stories she wants to pass on
to someone, or if she wants to share some family history or advice with
children or grandchildren. You may feel awkward starting such a conversation,
but you could be pleasantly surprised at what you learn. If you’ve had such
conversations throughout your lives, then this may be a chance to reminisce.
Throughout this time, remember that you too,
need care and support. You can help your mom by taking good care of yourself.
This includes taking time to do the things you enjoy. Obviously. you want to
help your mom cope with her advanced illness, but you can’t do this if you get
ill or overcome by exhaustion. Consider talking about your feelings and
concerns with someone that you trust. Recognize and accept that you can’t meet
all your mother’s needs by yourself. Accept help from people who want to be
involved.
There may be resources available to you and
your family that can support you. For example, there may be a palliative care
program or hospice palliative care association in your region. Such
organizations are leaders in end-of-life care. They can offer help and point
you to resources available to patients and families.