Books, Links, and More

We've compiled resources in both French and English, to give you the broadest possible range of available information. To see resources in French, click in the top right corner of the page.

If you have a favourite palliative care resource that doesn't appear here, suggest a resource below.

Diseases
ALS
A Caregiver’s Handbook for Advanced-Stage Huntington Disease
The purpose of this handbook is to help caregivers know what to expect as the illness progresses and tips for providing care. read more...
Huntington Society of Canada
National information website with helpful resources for patients, families, and health care providers. read more...
Huntington's Disease Youth Organization
Website by Huntington's Disease Society of America contains resources for children, teens, young adults, and professionals. read more...
Loss and Grief: Coping with the Death of a Loved One and with Other Losses Related to Huntington Disease
Patients, family and friends affected by Huntington disease experience an extraordinary amount of loss. This online resource re... read more...
Understanding Huntington Disease: A Resource for Families
This guide covers a wide range of topics for family/friends. Available in English and French as a downloadable file, free... read more...