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Hard to move forward... 
Started by Joni 76
22 Apr 2021, 2:20 PM

My beautiful mama passed away on October 2, 2020. Almost a year to the date she found out about her cancer. My mom was sick when she found out she had cancer, so I quit my job and moved in with her to help with whatever I could. It was a no brainer for me since she has always been my best friend and we would do anything for eachother ALWAYS. 

At first my helping looked like minor household chores; laundry, cooking, dishes, taking her to appointments and filling her perscriptions. As time went on she declined daily and we were both in a constant state of not knowing what to expect and an ever changing day to day sometimes morning to night changes. We could never imagine or prepare for what was ever coming next. I remember feeling at the time like i was doing every thing i could do to help her.  It was a stange time for both mom and myself almost a role reversal. My mom was the person, never sick herself and always taking care of someone else. I remember her saying to me one day (after she was bed ridden) "do you know how hard it is to be sick like this in bed, when I've never been sick in my life! This was heart breaking to me, one of the many heart breaks I would face. 

As the Cancer progressed her condition declined. I guess I felt I should have known what to expect, as unfortunately, I have had other family members pass away due to cancer. I was clueless as to what challenges mom would face and the pain she would be in, not to mention the mental toll it must take on a person. I just pushed through, I called it survial mode. Never really thought about how I would get through. It takes it's toll on a daughter, caregiving for your mother, watching her fade away. I would never change it and not be there for her but I do wish that my other family members and siblings would have done more for her so I could have still felt like her daughter and her best friend (as we were all through her life when she was well) instead of the doctor the nurse and the cca. The system also failed my mother which left even more responsibility on me to take care of her in ways I had no idea how to. I know that i did do my best. I know she was proud of me.

I think that because I was her caregiver, when she past away I immediatly felt usless when i would check the time ad it was 10 am and I had no meds to administer, no breakfast to make, no morning chats of how she is feeling today. It's now been over 6 months and i cannot seem to find another purpose in my life although i know i have many. I am a wife and have step children as well as an older child. I am also the oldest so i feel all those great and special things that mom always did will fall on me. However I don't feel like I've been participating in life since mom died. I am very disengaged, disinterested and prefer to recluse. I'm just in a dark cloud of sadness constantly. I'm really not sure why some people don't seem to realize that I had a life with her for 44 years, talking on the phone or seeing her daily for 44 years! Each day now, everyday is now the longest time in my life I've gone without speaking to her, or seeing her and I'm very aware of it. You end up seeing a lot in people you thought you knew during sickness and in death. It's been very dissapointing to me in my experience. Some people and relationships even family members have what looks like given up on me quickly. After two months of mom passing away I found a lot of people gave up on me. Lots of people think they know where you should be in your greif based on time passed. Those people have now shown me that they had no idea of the magnitude of mine and my mothers relationship. I basically have cut those people out of my life now. So I lost more than my mother when my mom died.

At this point (6 months after mom died) I find myself looking for groups and programs such as this with like-minded people, simular situations and emotions. This is what seems to be helping through, along with many self help books, writing in my journal; sometimes directly to mom or just about how I'm feeling in that moment. All of the emotion you feel and when you feel what, is a big challenge to get through for me. I have never been good at idetifying what I'm feeling and why. In greif I am getting much better at it as they are way to big and to much to keep in. I know i will one day again enjoy life and find joy in life. I also know these will take babysteps and time to get there. Those who will not wait for me I'm ok with letting them go.

Those who can listen, relate and be in the pain and darkness along side of me; Thank you for listening and understanding.

All of us greiving; there will be a time when our pain is at bay, we will find joy in this life again!
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Reply by eKIM
22 Apr 2021, 3:15 PM

Hi Joni

The power of Journaling !!! 

Doesn't it feel good to get something off of your chest?  That's one side of the coin. 

The other side is someone to hear you, otherwise, it would be just like crying out into a storm.

I was very moved by your story, Joni.  The beauty of your love is inspiring. 

The beauty and wonder of love is that even though love seems to weigh you down in the present, love will be the "wind beneath your wings" that will uplift and sustain you on your Journey of Healing. 

This is what happened to me when I lost my Mom - the person in my life who from day one loved me without limits and without conditions.  No wonder we feel so sad at our loss!

I hear you, Joni and I will respond in more detail later, I promise.  I can't now because I just got handed 2 items for my "Honey-Do" list.  After 51 years of marriage, I know my priorities.  lol

I will respond with more later, Joni.  In the meantime, I will send you a little "arrow prayer" to let you know that there are compassionate people who care.

- eKim

ps  I saw your wee candle


The Path and the Candle

There are over seven billion humans on planet earth on seven billion paths.

No two humans travel the same path and no two paths are identical.

Our unique path follows our individual experiences of life.

Sometimes we are happy and sometimes we are sad.  Sometimes we are afraid.

That is the nature of the path.

 

On our path, we each carry a tiny candle which lights up only a small area directly in front of us.

There is only enough light for the next step ahead.

Although we travel our path alone, we need not be lonely, yet some humans are.  Why?

 

There are those who stare at their own candle and the next step ahead of them.

Their pupils constrict and they cannot see much other than their own candle.

Wrapped up in themselves, they cannot see what or who is around them.

Their focus is too near.


 There are others who gaze up to the stars and see millions of lights.

As their pupils dilate they ponder if the stars are wanderers just like themselves.

Wrapped up in the unknown, they cannot see what or who is around them.

Their focus is too far.


Then there are those of us who choose not to be lonely as we journey along our path.

We look ahead and in doing so we are peripherally aware of other lights just like our own.

They twinkle and glow like fireflies in the night.  Some lights are near.  Some lights are far.


Every so often one of the lights comes very near to us, or perhaps we come very near to it.

We notice that it is a candle, just like ours carried by another human, not too different from us.


We pause, we observe, we wonder.

We notice that their candle only lights up a small portion of their path ahead of them, just like our own.

As we come closer to one another, we place our wee candles side by side.

Lo and behold, we each can see twice as far as before.

And now we no longer feel lonely or afraid.

Our focus has been made just right.


- eKim


 


 

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Reply by Joni 76
23 Apr 2021, 1:07 PM

Hi EKIM,

Thank you for taking the time to read and hear my story. 

I am still seeking out things and ways to heal that might work for me. I know I cannot continue  to not participate in life. I've got things to do! lol

Your poem was lovely and thank you for sharing!


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Reply by eKIM
23 Apr 2021, 3:11 PM

Hi Joni. 

I am sorry that you are going through this. 


As a volunteer (not a professional counsellor) I have been comforting people who grieve for 10 years now.  Everyone grieves differently.  It is not possible to tell anyone how to react or how to grieve.  It’s not ethical to do so either. 


The one common denominator I have found is that it does get easier with time. 


Dr. Alan Wolfelt is one of the top experts in the field of grief and bereavement.  He has many books on the subject.


I am enclosing a link below. 


The Six Needs of Mourning - Center for Loss & Life Transition


You might want to look at these stages of mourning and reflect on them.  You can, if you wish, share your thoughts here on this site.


Peace be with you.


- eKim

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