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Small Cell lung cancer metastasis to the brain and adrenals 
Started by SLS
07 Oct 2024, 9:57 PM

Hi my husband was diagnosed with small stage lung cancer with a large mediastinal mass that's been treated with four rounds of chemo and immunotherapy and radiation. we just found out there is small metastasis to the brain. His radiologist Wants to radiate his brain and he's very Hesitant because of the potential cognitive decline. we're looking into alternative therapies right now. what I'm struggling with is my husband also has depression and a cannabis habit for the last forty years so it's been a difficult time navigating all three. We've been in contact with addiction services and psychiatrist just nothing on a consistent basis. We have drifted apart as husband and wife and more as just patient and caregiver. a lot has changed since his diagnosis in February I want to be hopeful for the both of us it's just difficult with the moods being so up and down. Any advice O'clockwouid be appreciated 

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Reply by eKIM
08 Oct 2024, 4:21 PM

Hello SLS

This is Michael.  First of all, I am sad to hear about the difficulties that you and your husband are going through.

On this forum, you will always find someone to listen to you when you need to “let it out” to a compassionate “good listener”. 

I have been a volunteer with Canadian Virtual Hospice since 2012.  Very simply, I love people and love helping people.

Last December, I was diagnosed with stage 4 prostate cancer and have undergone radiation and surgery with the goal of extending my life for as long as possible.

On October 3rd, my wife and I celebrated our 55th anniversary.  She is my caregiver and I feel blessed to have her.

Your husband is a lucky man to have you by his side during these difficult times. 

Here at Canadian Virtual Hospice, we are volunteers and not professionals, so we cannot offer advice.

I have found that over the years that people have a great need to be heard.  If you would like us to fill this role, we will be here for you.

So please, feel free to “unload” here, 24-7-365.  Someone will always get back to you and be by your side if only in this “virtual” way.

I send you thoughts of peace and lovingkindness.

-      Michael

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Reply by SLS
08 Oct 2024, 4:53 PM

Hi Michael 
thank you for responding and I'm sorry you have to now deal with your own cancer diagnosis ...It sounds like your wife has been the constant for you and great to appreciate that. Its Not easy for my husband to hear advice unless it's from someone who's also experiencing death possibly soon.  I can be understand and empathize but when it's happening to you he feels different. He tried online chat groups and support and it just made him feel worse about his condition. Hes met with healers, is in prayer groups and open to alternate anything as hope for small cell is living maybe a year. My husband is Angry and resentful that he won't see his kids grow up, get married have grandchildren etc... this is both our second marriage and I have three kids two are married and two grandkids so hard for him to process through that as he also wants that experience with his own kids. I don't know what to say a lot of times I try to listen mostly and say that statistics are just that there's a Million variables he could possible be that small percentage that makes it through although at stage 4 his doctors think otherwise 😔
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Reply by eKIM
08 Oct 2024, 6:26 PM

Hi, SLS

You are so right.  My wife has been my constant – in fact, more than that.  Regardless of any “ups and downs” in our 55-year marriage, she is solidly “there for me” now in my greatest time of need.  I am such a lucky man.

I call her my EarthAngel.  I don’t even know you, but I suspect that you too are an EarthAngel (definition): “One who puts others before themselves.  All are called to be EarthAngels.  Not all respond.”

I have been a hospice volunteer since 2010 and I have met hundreds of EarthAngels – spouses, caregivers, friends, and medical personnel.  So I am pretty good at recognizing them.  And you are one, my dear.

I mentioned that we are not allowed to give advice on this site, however, we can pass on what has worked for us and what we have seen work for others.

No two people react the same, so what might work for one will not for another.  But if you have many things to look at, perhaps one will resonate.


YOU SAID: “It's Not easy for my husband to hear advice unless it's from someone who's also experiencing death possibly soon.”

What do you think of the following idea? Perhaps share these “postings” with your husband to see if he might find them helpful.


You are right about it feeling different when it’s happening to you.  As a hospice volunteer, I am always able to stay compassionate without becoming emotionally overwrought.

However, with my cancer, I do have tearful days.


Online groups work well for some people, however, they are not for everyone.  Dealing with one’s own situation is sometimes made more difficult by listening to the stories of others.  I get that. 

For me, I find that the entire time that I am focused on others, I am not focused on my own situation.  My volunteer work is therapeutic for me.  Again, this will not work for everyone.


Are you and your husband people of faith – organized religion or otherwise?  Is your faith a comfort to you?


YOU SAID: “I don't know what to say a lot of times I try to listen mostly.”

You are fulfilling a great need, especially when you don’t know the answers or unanswerable questions are asked.

The anger is to be expected, of course, and other than letting him vent, there is not much else you can do.  But doing that might be a HUGE thing for him.


YOU SAID: “and say that statistics are just that there's a Million variables

he could possible be that small percentage that makes it through although at stage 4

his doctors think otherwise


You and my wife have that in common.  She always looks at the positive side and it keeps my spirits up.  That is a good and necessary thing.

My doctors have laid out the typical survival averages but I have heard anecdotally of people living for years and years with my cancer.

I’m not telling you what to do, but here is my approach:  “I hope for the best, but prepare for the worst.”  My goal is to live the fullest in the unknown time remaining. 

If I stay in a negative mood and I live for years, I have wasted that time unnecessarily.  If I pass away in a short time, I have wasted that time unnecessarily.


I am having a “rest day” today in my Lazyboy chair.  I didn’t sleep well last night.  Therefore, the quick responses to your postings.

You can post here 10 times a day or 10 times a year, whatever suits your needs.

All I can promise is that I will read everything on the day you post it. 

If I can, I will respond quickly.  If I have “stuff” happening, ie doctor’s appointments, family duties, etc.  I might not reply for a couple of days or so. 

I tell you this so that you know it will be circumstantial and not because of a lack of caring on my part.

Peace be with you.

-      Michael

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