Dear Homemaker,
Another member Carlyn is having trouble logging in so she asked me to post this for her:
Currently, I live with a diagnosed rare disorder which is very disabling. I don't want to name it because I like my anonymity here and I'm known in my illness field ;-) In advanced forms of my illness, it will progress to rare types of cancer involving blood or bone. So that's what I live with now. For the past 9 years, my doctor has been gently trying to see if we can make things better. We have tried everything and my suffering of symptoms is worse now ... I think my body is shutting down interminably slowly. I’ve lived with my illness, since diagnosis - which took years - without being able to work, for 20 years.
My father died of this and I know where it’s going and how it will likely end for me. I’ve tried hard but I am very tired of the symptoms and pain and severely restricted living. So I am choosing MAiD now.
I hope you have a caring doctor. Mine is a rare GP who works with mental health focus in the hospital too. I wouldn’t have made it all these years without my doctor ... he’s very skilled, patient, careful and wise.
My heart goes out to you. All I can say is speak with your doctor about how you’re feeling, not just physically, but emotionally.
Carlyn