The Canadian PalliativeCOVID-19 Registry

The Canadian Palliative COVID-19 Registry creates a national registry of baseline characteristics and clinical outcomes of patients with life-limiting illnesses and suspected or laboratory confirmed COVID-19.

Why do we need the COVID-19 Registry?

This registry will assist quality improvement and surveillance efforts on a national level, to improve palliative care provided to people with life-limiting illnesses and COVID-19. The focus will be on clinical management of palliative and end-of-life care, including health system capacity and preparedness to care for patients in the context of a pandemic.

Who can participate?

Eligible Clinicians: Any clinician who provides palliative care to patients in any setting may submit a case. This may include family physicians, oncologists, internists, intensivists, geriatricians, respirologists, specialist palliative care clinicians and others.

Settings: Acute care, long-term care, complex continuing care, home care, palliative care units, hospice, and the community.

When should clinicians submit a case?

Enter data into the registry only after a minimum of 7 days from when a COVID-19 case is suspected, or if it has been determined that sufficient time has passed to observe the disease course through the resolution of acute illness or death of the patient.